A View of the World Through the Thoughts and Lens of Scott Kasper

Posts tagged “Food and Drug Administration

Family

Webster’s Dictionary defines the word Family as a group of people united by a common affiliation or characteristics.

That definition holds a significant meaning for me and for my “family”. Using its most basic interpretation my family is defined by the following:

  • My beautiful, loving, patient, and devoted wife (who doubles as my best friend!!)
  • Three amazing children (it’s hard for me to resist insert bragging here!!!)
  • My wonderful parents who helped guide me to becoming the man that I am today
  • Two incredible brothers
  • A mother-in-law and father-in-law who love me as one of their own
  • Seven brothers and sisters-in-law (you could delete the “in-law” part…they all feel like siblings to me!!)
  • And fifteen nieces and nephews that would make any uncle proud every day!!

For better or for worse my life expands that definition, as I have a much larger family. At times I feel fortunate to be a part of this extended family. Other times I rue the day that we adopted each other into our respective lives. I know personally many members of this family, yet there are many others with whom I am united by our common affiliation yet I may never meet. Every day I hear about people who have become the newest members of this family, but who may not yet even realize that they are a part of something much larger than themselves and may or may not know that this family is there to support them. I have a love/hate relationship with this family; these are the family of people impacted by Type 1 Diabetes…all 3 million (and growing every day) of them!!!

There are some amazing kids (and parents) in this family whom I have come to know and love over the past 7 years since Jake was diagnosed. There are kids like my sons Jake and Matt, my mom (yup…she’s just a big kid), my sister-in-law Anne, and Cousin Zack, as well as Emily (actually two Emily’s), Chloe, Matt P, Avery, Aidan, Nate (whom I have come to know from all the way in Texas), McKenna, Evie, Ian, Kerri, Brian,  Mike and Joe…I could go on and on…but this family tree is just far too big.

Like all families, this one gathers from time to time. We have events like Galas, Walks, Golf Tournaments, Support Groups, committee meetings, and many more family reunions for various important reasons…whether we like it or not!! When my nuclear family meets, we discuss how the kids are doing in school, vacation plans, sports, and politics. It’s usually light hearted and focuses on the wonderful things that we all share.

When my extended family meets, however, we are focused on topics such as which model insulin pump is the best on market, whether or not insurance covers continuous glucose monitors, when the FDA will approve the closed loop artificial pancreas, and our latest experiences in area hospital emergency departments and pediatric intensive care units.

I am reminded of a saying: one can choose his friends, but one cannot choose his family. Well, I hope to prove that adage is wrong and outdated so that I can choose to no longer be a member of this family…that’s why I work tirelessly with the Juvenile Diabetes Research Foundation to help raise the funds needed by the world’s leading researchers to identify better treatments for today, and a cure for my kids tomorrow!! That’s why I am participating in this year’s JDRF Ride to Cure Diabetes in Lake Tahoe on September 11. Click here if you would like to help by making a donation: http://www2.jdrf.org/goto/teamkasper

You see if we raise enough money to fund enough research, we will find that cure for my family.

When that happens we will have another gathering…another family reunion. At that reunion we will celebrate our significant accomplishment. More importantly, at the end of that reunion, an announcement will be made to let everyone know that our family will be disbanding and there will be no more reunions!

We’ll still gather from time to time, but it won’t be the same. We’ll talk about sports, politics, vacations, and kids accomplishments in school. It will be light hearted because none of us will go home to put our kids to bed wondering whether or not they will wake up the next morning.

Our family will be defined as being a group of people united by victory over Type 1 Diabetes!

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