A View of the World Through the Thoughts and Lens of Scott Kasper

Posts tagged “Insulin pump

Family

Webster’s Dictionary defines the word Family as a group of people united by a common affiliation or characteristics.

That definition holds a significant meaning for me and for my “family”. Using its most basic interpretation my family is defined by the following:

  • My beautiful, loving, patient, and devoted wife (who doubles as my best friend!!)
  • Three amazing children (it’s hard for me to resist insert bragging here!!!)
  • My wonderful parents who helped guide me to becoming the man that I am today
  • Two incredible brothers
  • A mother-in-law and father-in-law who love me as one of their own
  • Seven brothers and sisters-in-law (you could delete the “in-law” part…they all feel like siblings to me!!)
  • And fifteen nieces and nephews that would make any uncle proud every day!!

For better or for worse my life expands that definition, as I have a much larger family. At times I feel fortunate to be a part of this extended family. Other times I rue the day that we adopted each other into our respective lives. I know personally many members of this family, yet there are many others with whom I am united by our common affiliation yet I may never meet. Every day I hear about people who have become the newest members of this family, but who may not yet even realize that they are a part of something much larger than themselves and may or may not know that this family is there to support them. I have a love/hate relationship with this family; these are the family of people impacted by Type 1 Diabetes…all 3 million (and growing every day) of them!!!

There are some amazing kids (and parents) in this family whom I have come to know and love over the past 7 years since Jake was diagnosed. There are kids like my sons Jake and Matt, my mom (yup…she’s just a big kid), my sister-in-law Anne, and Cousin Zack, as well as Emily (actually two Emily’s), Chloe, Matt P, Avery, Aidan, Nate (whom I have come to know from all the way in Texas), McKenna, Evie, Ian, Kerri, Brian,  Mike and Joe…I could go on and on…but this family tree is just far too big.

Like all families, this one gathers from time to time. We have events like Galas, Walks, Golf Tournaments, Support Groups, committee meetings, and many more family reunions for various important reasons…whether we like it or not!! When my nuclear family meets, we discuss how the kids are doing in school, vacation plans, sports, and politics. It’s usually light hearted and focuses on the wonderful things that we all share.

When my extended family meets, however, we are focused on topics such as which model insulin pump is the best on market, whether or not insurance covers continuous glucose monitors, when the FDA will approve the closed loop artificial pancreas, and our latest experiences in area hospital emergency departments and pediatric intensive care units.

I am reminded of a saying: one can choose his friends, but one cannot choose his family. Well, I hope to prove that adage is wrong and outdated so that I can choose to no longer be a member of this family…that’s why I work tirelessly with the Juvenile Diabetes Research Foundation to help raise the funds needed by the world’s leading researchers to identify better treatments for today, and a cure for my kids tomorrow!! That’s why I am participating in this year’s JDRF Ride to Cure Diabetes in Lake Tahoe on September 11. Click here if you would like to help by making a donation: http://www2.jdrf.org/goto/teamkasper

You see if we raise enough money to fund enough research, we will find that cure for my family.

When that happens we will have another gathering…another family reunion. At that reunion we will celebrate our significant accomplishment. More importantly, at the end of that reunion, an announcement will be made to let everyone know that our family will be disbanding and there will be no more reunions!

We’ll still gather from time to time, but it won’t be the same. We’ll talk about sports, politics, vacations, and kids accomplishments in school. It will be light hearted because none of us will go home to put our kids to bed wondering whether or not they will wake up the next morning.

Our family will be defined as being a group of people united by victory over Type 1 Diabetes!

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Stepping up the pace

Rachel and I have decided to participate in the 2011 JDRF Ride for the Cure at the Tour de Tahoe. Please let me tell you why.

For the past several years my family has been involved in the Walk for the Cure. The Walk is the main event in JDRF‘s efforts to raise money to find a cure for Type 1 Diabetes. Well, there is still no cure, and as a result 2 of my three sons must do many things every day that other kids their age don’t have to worry about.

  • My two sons still need to check their blood sugar multiple times every day.
  • They continue to be hooked up to continuous glucose monitors.
  • They get needle sticks to change those insulin pump sites every three days.
  • They go to the school nurse to have their blood sugar checked when other kids go right to gym or lunch.
  • They sit on the sidelines of the lacrosse game because their blood sugar bottomed out even though it’s their shift to play.
  • They watch other kids eat all of the things that they truly desire but know would be very bad for them to eat.
  • They have to remember to never leave the house without their “kits”…the supplies that the require to take everywhere they go.
  • They trade in their Halloween candy.
  • They wear medical identification everywhere they go…or at least they’re supposed to….(Matt, are you wearing an ID today???).
  • They add up every carbohydrate for every meal and snack they eat.
  • They end up in the hospital when they get a routine stomach bug.
  • They get woken up in the middle of the night, sometimes more than once, to have their blood sugar checked and they’re tired the next day because of it.
  • They have parents who have not slept through the night since the day of their diagnosis.
  • They have a brother who wonders whether or not some day he will become diabetic.

They have to do all of this, and more, in order to avoid immediate life threatening emergencies and/or long term co-morbidities of T1D such as heart disease, blindness, neuropathy, and kidney disease.

I’m tired of waiting for the cure…I’m tired of walking…it’s time to step up the pace!!

To those of you who know me, it’s no secret that I need to work on getting myself into better physical shape –  that is not an invitation for snide remarks in reply – You’ll see that I’ll handle that on my own shortly if you keep reading. It’s also no secret that Rachel and I have worked tirelessly to raise money to help cure Type 1 Diabetes. So, it seems that an opportunity to put the two together is the perfect combination!! This year our South Jersey JDRF Walk takes place on a weekend that we will be in Boston celebrating the Bat Mitzvah of one of our cousins. Although we won’t be here for our Walk this year, Rachel and I feel strongly that we need to continue our efforts in funding the research that will come up with a cure for our sons. At the same time we acknowledge that the training regimen for the walk does not accomplish my goal of losing weight and improving fitness.  So in an effort to continue our JDRF fund raising efforts, and in the interest of transforming my abdominal keg back into a six pack, we have decided to step up the pace of both our exercise routine and our fund raising.

Yesterday we registered to participate in the JDRF Ride to Cure Diabetes in Lake Tahoe in September. We will be riding the 72 mile circumference of Lake Tahoe with lots of others who have the same goal. As we train over the next few months, and as we ride through the High Sierras, we’ll be focusing on that long list of stuff that my kids need to do, and hope that it inspires us to pedal our way through the ride to help cure Type 1 Diabetes.

What can you do to help? Well, if you’re up for one of the most scenic bike rides in all of the United States and want to help raise money for a great cause, then click this link to sign up and join us.

If you’re not that ambitious, but you are feeling generous, then please feel free to click in this link (http://www2.jdrf.org/goto/teamkasper) and make a donation to help support our cause….we would truly appreciate the support!

I know that riding 72 miles in the Sierra Nevada mountains won’t be easy. But it’s nothing compared to the feat that my kids, and everyone else with T1D, accomplish every day in beating this disease. I know we can beat it for good, and I’m not gonna stop trying until we do!